After being blind-sighted by my daughters preterm birth at 28 weeks, a friend gifted me the Every Tiny Thing NICU Journal. This journal helped me feel educated and empowered in an otherwise overwhelming and unfamiliar environment. When I started Penelope Project, I knew I had to get these journals in the hands of as many NICU families as I could! Once parents receive this journal, they finally feel like they can advocate for their preemies. They have a guide on what to track, and questions to ask, taking one small thing off their crowded plate. Our Nurses love handing each new family their journal. They know that the layout lends itself to every parent becoming a NICU expert. Every Tiny thing has been amazing to work with. They make bulk ordering for our NICU Parent Packs a breeze!
Founder, CEO Penelope Project
Our experience is that NICU families love and appreciate these books. My wife, Patti is an SLP and works with people in the NICU and she is always telling me stories about the people getting the books. There was even one dad who just sat there hugging his book when he couldn't hug his child.
The best thing about these books is that they are like normal baby books but also have all of the extra stuff that parents need to keep track of for a NICU baby. As a former NICU dad (whose 32-week premie baby just graduated college) I can attest to the weird lost feeling that can creep over you as you navigate the sometimes rapidly changing conditions.
I think the cost is very reasonable. I mean we've been ordering and reordering these books for our NICU for years now.
The one thing we had an issue with regarding the nurses and other staff is we just want people to have them but they were being more selective for a while and only giving them to the long-term people. We finally compromised by saying that if anyone else who hadn't received a book asked about them or expressed an interest they could have one no matter what.
The staff seems to be very appreciative of the donation and also seems to enjoy giving them out.
It feels great to drop them off. I try to bring our youngest son along (now 11) and he gets a kick out of it too. He really appreciates the cards we have ordered for each book with his mommie's name on them.
In conclusion, the ordering process is always easy. There was only one time when we needed to buy the soft cover version because the hardcovers were out of stock but people didn't notice. Delivery is fast and the boxes are divided up so they are nice and light so Patti can carry them into the NICU sometimes.
Love the books!